It is officially 21 years since Ron’s initial biopsy for his brain tumor. It was 21 years ago that I insisted that he come home with me to do home rehabilitation. He had become paralyzed on the right side leaving him with minimal function of his arm and leg. He needed a quad cane to walk and his speech was slow and he had trouble with nouns. Our life as we knew it had been changed. Prognosis, all we knew was that it was a "good tumor", a low grade astrocytoma. Of course as a nurse I looked up the stats and it was looking like 2-3 years. They would not treat the tumor at this point because of the damage they did just taking the biopsy. So we headed home. I had just started a job in home health/hospice and he was going to get home therapy vs a rehab facility. He worked hard and was able to regain most all function. Jump ahead to the end of 1992 and he was able to get radiation – fractioned stereotactic radiotherapy.
Then in 1998 he started losing function again on his right side and he was labeled aphasic, lost the ability to name things (nouns). Despite surgery in 1996, 1998, 2000, 2007, 2010 he has never regained this function or ability to speak. So how do I feel 21 years later? Oh so grateful that he is here with me. Amazed every day at what he accomplishes despite his challenges. Determined to share our Hope and inspiration with others. How you approach life is a choice. Making the best of what you have and finding the moments of bliss is a habit you work on every day. I have read recently that many folks have given up on Hope and that breaks my heart. What is Hope? Hope to me is very personal. I did not hope that his tumor would go away, rather I had hope that we would have the strength to face the next challenge.
To read our story visit my blog prgauvin.blogspot.com or visit https://www.facebook.com/hopethroughtheeyesoflove