Caregiver Information

“Caring for someone with a brain tumor is just as stressful (but in a different way) as having the diagnosis.”
–frankly speaking[1]

Delegate responsibilities. You do not have to do everything. Other friends and family members will want to help, so don’t overload yourself. Consider respite care, which is “a short-term, temporary relief to caregivers who are providing full-time support to an ill loved one. Respite offers intensive care for the patient in their home so a caregiver can take a break.”[2]

“Don’t lose sight of yourself. It’s easy to get wrapped-up in the process of appointments and waiting… Take even 5 minutes to find out what you need for yourself. It’s not easy, but you have to take care of yourself too.”[3]

Though it may be tempting to quit your job to spend all your time and energy with your loved one, practical financial considerations will mean that most people will need to go on with life as normal. After your loved one’s treatment you will still need to have a job and bring in income, so for most people they will need to continue with a lot of normalcy in this aspect.

“Being on the sidelines is scarier than being in the operating room.”
- Everywhereist[4]

Links

Caregiver Action Network is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.

Family Caregiver Alliance illuminates the caregivers' daily challenges to better the lives of caregivers nationally, provide them the assistance they need and deserve, and champion their cause through education, services, research and advocacy.

National Cancer Institute: Caring for the Caregiver is a pamphlet created by NCI that addresses how to take care of yourself as a caregiver and where you can go for support as you take this role on in your life.

Cancer Support Community: Tips for Caregivers is a list of ten tips for caregivers including resources and information and how best to take care of yourself.

Sources

[1] “Frankly Speaking About Brain Tumors,” Cancer Support Community, National Brain Tumor Society, ABC2 and the Musella Foundation, 2013.

[2] “Frankly Speaking About Brain Tumors,” Cancer Support Community, National Brain Tumor Society, ABC2 and the Musella Foundation, 2013.

[3] “Frankly Speaking About Brain Tumors,” Cancer Support Community, National Brain Tumor Society, ABC2 and the Musella Foundation, 2013.

[4] Everywhereist, http://www.everywhereist.com/